Alzheimer’s disease and related dementias are highly prevalent among Latinos, who are up to 2x more likely to develop Alzheimer’s than non-Latino whites. Despite their higher risk for dementia, Latinos are also excluded from participation and leadership in research that impacts them. If research is conducted without representation from Latinos then the data and interventions (for example, drug treatments or dementia care services) may not line up with their needs, values, and culture and can even be harmful to Latinos.
Latinos may be more able to participate in research if they are included in determining what is studied (setting priorities), how the studies are conducted (methods), and what the studies measure (outcomes).
Our community Steering Council is leading a project to connect with Latinos in South Texas to better understand what they believe dementia care research should focus on.