How and why we do research
Why do we conduct research at Caring for the Caregiver?
As an academic-service center, Caring for the Caregiver is uniquely positioned to serve our community of caregiving families. Central to our work is what we call the research-service continuum. This means that we are constantly seeking input from our community to develop and improve our services. Sometimes this means asking caregivers to complete a survey after participating in a program, or participating in an interview. In other cases, we might ask for “biospecimens” like saliva or blood that can help us to understand how aspects of caregiving “get under the skin” to affect caregivers’ health.
How is information I provide during a research study used?
Each study we do at Caring for the Caregiver may use the information we collect in different ways. Sometimes we use what we learn from studies to improve our own services. In other cases, we are interested in informing other programs serving caregivers like ours. In these cases, we might present findings in academic journals and at scientific conferences. We also want caregiver to know about what we are learning. In most cases, individuals participating in Caring for the Caregiver studies may request information about findings.
How is research conducted at Caring for the Caregiver? (Is my data secure?)
All studies have different procedures, but generally we do not share information collected during a study that can be used to identify an individual without their permission. When you sign up for a study at Caring for the Caregiver, you will be informed about what is involved and your questions about risks and benefits of participation are welcomed. Personnel who conduct research at Caring for the Caregiver are required to undergo training on how to securely handle private information.
Additional information about research conducted at Caring for the Caregiver
- Some, but not all, opportunities do offer payment as a thank you for your time.
- Studies may include caregivers, recipients of care, or both care partners.
- Not sure where to start? We would be happy to provide guidance on which current or upcoming research programs you may be eligible to participate in. Please contact Kylie Meyer, PhD at firstname.lastname@example.org if you would like to discuss which research projects may be of greatest interest to you.