Caring for the Caregiver Advisory Council

The Caring for the Caregiver Program has grown rapidly since its start just three years ago. We are grateful to the families and community partners who have supported us during this time. This program was founded with the voice of the caregivers and community partners through community forums and ongoing feedback following our events.

We would now like to find new ways to integrate the voices of family caregivers into our services, research, and community engagement. Recently we sent a survey to learn more about our caregivers in our community. We would like to continue to learn about caregivers’ emerging needs and how we can best respond to these needs by forming a Caring for the Caregiver Advisory Council. The Caring for the Caregiver Program is also uniquely situated in a university setting, which allows us to test innovations to better serve you and learn about caregivers’ experiences through research. It is important to us to involve the voices of caregivers into our research program.

We invite you to participate in an inaugural Advisory Council Meeting on June 25th from 1:00 pm to 2:15 pm. You are not committed to join the Advisory Council if you choose to attend, but we hope to share more information about what this might look like and learn what you think. This is a virtual meeting using Zoom.

If you are interested in attending, please use the form linked below to share your contact information so we can provide you with call details:

Click here to receive an invitation to the first Advisory Council

You may also call us at 210-450-8862 to express interest in joining the council, or if you have any questions.

Caregiver glucose monitoring

We are inviting caregivers who have a diagnosis of diabetes or who are caring for a family member living with dementia who also has diabetes to contact us to see if you would be eligible to participate in a study evaluating continuous glucose monitoring. The monitors are being provided by The Center on Smart and Connected Health Technologies at UT Health San Antonio. If you are interested in learning more about the study, please contact Carole White at 210-567-5831 or by email at whitec2@uthscsa.edu.

Stakeholder Advisory Council

Are you a family caregiver or person living with dementia who is interested in working side-by-side with researchers to investigate care for families living with dementia? Contact us if you would like to join our Patient-Centered Outcomes Research Stakeholder Advisory Council to build your research capacity and to inform projects with your lived experience and personal perspective.

Enter our online community for discussions and resources in patient-centered outcomes research.

The Biggs Institute

What are clinical trials? Clinical trials are research studies used to find new and better ways to treat and prevent Alzheimer’s and other neurodegenerative diseases. With the help of research volunteers, we are able to learn more about dementia and its risks and patients are able to have access to advanced treatments. Once researchers find a promising treatment, the treatment will be made available to people that meet the criteria for the particular disease being studied.

Alzheimer’s Association

Alzheimer’s Association TrialMatch® is a free, easy-to-use clinical studies matching service. Without clinical trials, there can be no better treatments, no prevention and no cure for Alzheimer’s disease. Scientists work constantly to find enhanced ways to treat diseases, but improved treatments can never become a reality without testing in clinical trials with human volunteers.

Caring for the Caregiver has several active research projects. Contact us any time to learn how you can be a collaborator in research.

Contact us