Stakeholder Advisory Council

Are you a family caregiver or person living with dementia who is interested in working side-by-side with researchers to investigate care for families living with dementia? Contact us if you would like to join our Patient-Centered Outcomes Research Stakeholder Advisory Council to build your research capacity and to inform projects with your lived experience and personal perspective.

The Biggs Institute

What are clinical trials? Clinical trials are research studies used to find new and better ways to treat and prevent Alzheimer’s and other neurodegenerative diseases. With the help of research volunteers, we are able to learn more about dementia and its risks and patients are able to have access to advanced treatments. Once researchers find a promising treatment, the treatment will be made available to people that meet the criteria for the particular disease being studied.

Alzheimer’s Association

Alzheimer’s Association TrialMatch® is a free, easy-to-use clinical studies matching service. Without clinical trials, there can be no better treatments, no prevention and no cure for Alzheimer’s disease. Scientists work constantly to find enhanced ways to treat diseases, but improved treatments can never become a reality without testing in clinical trials with human volunteers.

Dogs for people living with dementia

Dementia dogs and their impact on persons dwelling in the community with mild to moderate dementia and their caregiver. The participants (person with mild to moderate dementia and their caregiver living together) should fall into one of these 3 categories.

  1. living with a companion dog (pet) for at least one year.
  2. living with a service dog for at least one year.
  3. do not have a dog, but are on a waiting list for a service dog or would be interested if the service was available in their region.

The research project involves a 45 min. interview phone call and online questionnaires (15 min.) for the caregiver. For the person with dementia there will be an interview call and an activity monitoring wristwatch to be worn for one week. In appreciation for volunteering persons with dementia and caregivers will receive $25.00 each.